Full Description
A great majority of people with neuromuscular diseases like muscular dystrophy, ALS, spinal muscular atrophy, myasthenia gravis and post-poliomyelitis continue to be told that they have "terminal illnesses" and are not offered management options that can spare them of cardiopulmonary morbidity and mortality. This book is unique in offering viable management alternatives that result in a patients prolonged survival and enhanced quality of life.
Contents
Section 1: General Evaluation and Management Concerns 1. Disease Assessment and Evolution 2. Medical Therapies and Research 3. Nutrition 4. Swallowing and Gastrointestinal Concerns 5. Cardiac Management Section 2: The Physical Intervention Stages 6. Stage 1: The Ambulatory Stage 7. Stage 2: Stage of Loss of Ambulation 8. Conventional "End-Stage" Management Section 3: The Stage of Prolonged Quality Survival 9. The Physiological Basis of Aiding Respiratory Muscles 10. Noninvasive Respiratory Muscle Aids, Intervention Goals, and Mechanisms of Action 11. Respiratory Muscle Aids: Patient Evaluation, Respiratory Aid Protocol, and Outcomes 12. Pediatrics Respiratory Management 13. Quality of Life and Ethical Issues
